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Posts Tagged ‘Spirochetal’

Ticked off: Suffering from Lyme disease

In Lyme Disease on April 28, 2011 at 4:54 pm
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The author of this article has suffered for a decade from Lyme disease

Lyme came up the first time in 1996. I visited a rheumatologist, who’d had the disease himself. After hearing my symptoms, he ordered a blood test to look for signs of the Lyme bacterium. “But I’ve never had a bull’s-eye rash,” I said. He explained that only 60 to 70 percent of sufferers develop the telltale redness around their tick bite, and he promised to call with the results.

The test was negative, so the doctor tried to ease my symptoms with treatments, including dehydroepiandrosterone (DHEA), a hormone used experimentally to treat CFS. But my body aches worsened. After months of no improvement, I quit taking prescription pills—and seeing doctors—altogether. I lost faith in Western medicine. More

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Lexington, VA Lyme Disease Support Group Joins National Capital Lyme Association

In Lyme Disease on February 26, 2011 at 6:08 pm
Erythematous rash in the pattern of a “bull’s-...

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Rockbridge Resident Ellen Douty Appointed To NatCapLyme Board
National Capital Lyme and Tick-Borne Disease Association is pleased to announce that the Lexington Lyme Disease Support Group will be joining our organization and becoming the Lexington Chapter of the Association.

NatCapLyme welcomes this dedicated group into its family of support and advocacy chapters. The Lexington Lyme Disease Support Group meets the second Saturday of each month at 10:00 a.m. at the The Old Courthouse meeting room, 2 South Main Street, Lexington, VA. The meeting room entrance is at rear of building with handicap accessibility.

The support group is led by Rockbridge residents Ellen Douty and Adrienne Hall-Bodie. Ellen Douty has also been elected as a board member of NatCapLyme. Her background in teaching, marketing and promotion, and as a business owner will serve her well for leading and supporting Lyme patients and caregivers. Having had Lyme for over 15 years, she is passionate about Lyme support. She can be contacted at ellen.douty@gmail.com

Adrienne Hall-Bodie is a former teacher and retired after 20 years as administrative assistant at Washington and Lee University. She is an avid hiker and horseback rider, who recently discovered she has had Lyme for several years. Adrienne can be contacted at bodie@rockbridge.net Webpage is www.natcaplyme.org

Lyme disease has become endemic in Virginia with Virginia Governor Bob McDonnell forming a task force on the problem.

Members of the Lexington Lyme Disease Support Group and NatCapLyme will be traveling to Harrisonburg on March 15 to attend the first Public Patient Forum on Lyme Disease at JMU from 1 p.m. to 4 p.m. to speak on obstacles patients encounter when trying to get treatment. A Public Patient Forum will also be held in Roanoke that evening.

Information on the Virginia Lyme Task Force can be found at this websitesites.google.com/site/virginialyme/task-force/task-force-info

 

 

http://www.rockbridgeweekly.com/rw_article.php?ndx=19878

Lyme Disease: A Modern Tuskegee Experiment

In Lyme Disease on February 12, 2011 at 5:28 pm
Erythematous rash in the pattern of a “bull’s-...

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The Chicago Tribune recently ran an inflammatory article disparaging chronic Lyme Disease patients. You know, the poor saps who were out doing something healthy, like hiking, and were bitten by an infected tick. Insurance companies deny many of them treatment based on technicalities like notoriously inaccurate blood tests, living in the wrong county, failure to save the infected tick, or because guidelines incorrectly dictate that all cases of Lyme can be successfully treated with a few weeks of antibiotics.

Read more: http://technorati.com/women/article/lyme-disease-a-modern-tuskegee-experiment/#ixzz1DmoWbZIP

Lyme disease task force meeting draws experts, families

In Lyme Disease on December 21, 2010 at 6:29 am

Experts on the Lyme disease task force panel testify in Purcellville Nov. 30. Times-Mirror Staff Photo/ Rachel Leon.

The new statewide Lyme disease task force drew both local families and people from out of state to its first meeting in Purcellville Nov. 30.

Experts and local families testified about how the common disease is often misdiagnosed and untreated, leading to years of chronic complications.

The average person with Lyme disease goes undiagnosed for 1.8 years, with some suffering as long as eight to 10 years without diagnosis and treatment. According to the Centers for Disease Control, about 28 percent of doctors misdiagnose the bulls-eye rash associated with Lyme disease as eczema.

The disease is especially prevalent in Loudoun, and nearby states are looking to Virginia for advances in prevention, treatment and quick diagnosis. More

VA Group tackles Lyme disease

In Lyme Disease on November 28, 2010 at 5:43 pm

A tick no bigger than a pin-head has put a state task force to work trying to decide what should be done about the growing problem of Lyme disease in Virginia.

The tiny black “deer tick” can produce a rash with a clear center and various painful symptoms that, unless treated fairly soon, can be hard to cure.

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Autumn brings uptick in Lyme disease risk

In Lyme Disease on November 4, 2010 at 11:09 pm
Adult deer tick, Ixodes scapularis.

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Just because temperatures are dropping, don’t think the clock’s run out on Lyme disease.The threat “doesn’t really stop,” said David Simser, an entomologist with the Cape Cod Cooperative Extension. “There’s never a month without risk.”

James Chen, director of Urgent Care at Hawthorn Medical Associates in Dartmouth, said he has seen a recent small spike in patient tick bites over the last month or so. More

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